Christmas Blessing...

Saturday, December 27, 2014

Tonight, I cried....

We got ready, loaded up in the truck.. 
drove 45 mins to look at a huge Christmas lights display.. 
A whole caravan of our family.. 
Cousins and aunts and uncles and grandparents 
and even great grandparents! 
Isaiah did not get uncomfortable 
even once.. 

Left there and headed into the next town 
for coffee and Panera.. 

He laughed and played and was totally content with my daughter in the dark of the backseat with us..

My husband and I sipped coffee and my daughter 
 giggled and told me how beautiful I sounded as I sang 
along with Norah Jones all the way home.. 

Huge for our family.. 


This December has been a such a turning 
point in so many ways.. 

Isaiah had an itch and ooze free birthday.. 
Itch and ooze free Christmas..

Out and about with no wet wash cloths and extra balm.. 

Got home late and didn't even give Isaiah a bath 
until after midnight.. 

He rode his new trike next to my daughter's 
scooter all day long.. 

I found myself tonight rocking him to sleep.. 
Holding his soft little hand up against my face, 
thanking God for his smooth, scab free little fingers.. 
It hit me so hard and the tears began to flow.. 

I was back in our chair, that old worn out recliner, 
in the dim light from the kitchen and my mind 
went back to those months before.. 

The months we were bound to that chair.. 
Living day and night as I held his oozy 
wet bloody fingers.. Those nights 
where I prayed and begged for a miracle.. 
When I cried for the torment to end.. I sighed because 
there were no words that I even knew to speak.. 
I wished for change.. My heart was heavier than 
my mind thought I could even bear back then,
only a few short months ago.. 
I hoped for life to come to our son and our home again.. 
I wanted a 'normal' day and night.. 
I wanted Isaiah to enjoy life and be pain free.. 
Just to rest on a light pillow, not a bed of suffering.. 
I counted the minutes that felt like they would never end..
The months that seemed to stand still 
as life was moving and continuing around us..
 Seemed to be leaving us behind..

My mind went back to that place, and I fully realized we have overcome that hell.. 
We have survived.. 
Our son is alive and thriving.. 
We have made a full year with 
NO hospital stays with Isaiah .. 
NO doctor visits! We have now had almost 
a full month with no gauze.. 


I wanted to say to you that are in those dark nights of TSW

that seem to never end, hang on!! 
Dawn does come! Life comes back! 
Hope will fill your hearts again and the tears 
that fall will not be full of pain, 
but of thankfulness and joy.. 

Don't ever give up! 

Even when you think you can't make it another moment.. 
Push through!! You are stronger than you know 
and more capable than you even realize..

You are brave and courageous and you will win this fight! 

You are an overcomer!! 

My love is so deep for you all 
and Isaiah and I could have never made it to this 
place without you.. 
We are here for you! 
And will help carry you with our love and prayers.. 

Keep moving forward..

Next blog post - click here: MY TWO YEAR TSW UPDATE!!

My AMAZING update! Post #1 in blog photo series

Monday, December 8, 2014

(please click on any pics to enlarge)

Next Blog Post:
Christmas Blessing
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